Embodied narratives protecting identity interests through ethical governance of bioinformation /

Embodied narratives protecting identity interests through ethical governance of bioinformation

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Détails bibliographiques
Auteur principal: Cambridge University Press ()
Collectivité auteur: Cambridge University Press ()
Langue:English
Publié: Cambridge : Cambridge University Press, 2022.
Collection:Cambridge Bioethics and Law
Sujets:
Zagadnienia prawa administracyjnego państw obcych
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Accès en ligne:Zobacz publikację w Cambridge Core (Open Access)
Description:
Increasing quantities of information about our health, bodies, and biological relationships are being generated by health technologies, research, and surveillance. This escalation presents challenges to us all when it comes to deciding how to manage this information and what should be disclosed to the very people it describes. This book establishes the ethical imperative to take seriously the potential impacts on our identities of encountering bioinformation about ourselves. Emily Postan argues that identity interests in accessing personal bioinformation are currently under-protected in law and often linked to problematic bio-essentialist assumptions. Drawing on a picture of identity constructed through embodied self-narratives, and examples of people's encounters with diverse kinds of information, Postan addresses these gaps. This book provides a robust account of the source, scope, and ethical significance of our identity-related interests in accessing – and not accessing – bioinformation about ourselves, and the need for disclosure practices to respond appropriately.


Table des matières:
  • Attending to Identity (s. 1-30) https://doi.org/10.1017/9781108652599.002
  • Mapping the Landscape (s. 31-60) https://doi.org/10.1017/9781108652599.003
  • Narrative Self-Constitution (s. 61-88) https://doi.org/10.1017/9781108652599.004
  • Bioinformation in Embodied Identity Narratives (s. 89-119) https://doi.org/10.1017/9781108652599.005
  • Encounters with Bioinformation: Three Examples (s. 120-180) https://doi.org/10.1017/9781108652599.006
  • Locating Identity Interests (s. 181-217) https://doi.org/10.1017/9781108652599.007
  • Responsibilities for Disclosure (s. 218-246) https://doi.org/10.1017/9781108652599.008
  • Protecting Identity in Practice (s. 247-263) https://doi.org/10.1017/9781108652599.009